The Next Best Step
A lot has happened since our last post. We prayed for doors to open, and they did. We spent last week waiting to see if we qualified for a study at St. Jude's and at the same time trying to decide about another trial at Duke. On Friday, we found out we qualified for the trial at St. Jude's. We spent the weekend trying to decide between the two studies - as we needed to have a decision made by Monday. We prayed for doors to close and for discernment. Instead of doors closing, the Duke trial, which we thought would close on Monday, remained open. Also on Monday we heard from our doctor at NIH. She mentioned a trial at NIH, but because of medicine dosages and the head of the study being in Germany, it wasn't something we we thought was a real option. In fact, we really wanted her opinion between the St. Jude's study and the Duke one - not another open door to think about. Instead of discernment, we had confusion. That same day, I (Renae) found a folded up piece of paper as I was cleaning. Ella had written on it "The Next Best Step." I'm not sure when or why she wrote that, but since we did not feel we had a clear calling about what to do, it seemed like great advice - moving forward, taking the next best step, trying hard to trust that God would lead us where we needed to be. We felt the next best step was the trial at St. Jude's, and decided to pack-up for what would have meant spending a month in Memphis. Then on Tuesday as we were packed and ready to head out the door, we heard back from our doctor at NIH. She had more information on the NIH trial. Ella would actually be on a higher dosage of the chemo, and they could get us in right away. Our prayer was that this doctor would weigh-in on what we should do. We felt this was the answer. So, we changed directions and drove to Bethesda instead of Memphis. We're packed for a month, but will only need to stay through early next week.
Ella had her first dose of chemo this morning. It is in pill form, and she handled it like a champ. She's been having labs throughout the day and is in the art room at the moment. She'll take the medicine for five days and then be off for twenty-three days before the next round.
Words cannot express our gratitude to everyone who has prayed so hard for Ella and our family. Please keep it up!
Love & Blessings,
The Newmillers