Ella and I (Renae) arrived safely home Thursday night around 11:00. We went to Duke at 8:00 on Friday morning, met with our radio-oncologist, had Ella's simulation and then her first round of radiation. We went again this morning and she had her second dose. She'll have Sunday and Monday off, and will start back on Tuesday. She will have somewhere between 10-14 treatments that will hopefully destroy the large mass that is pushing on her spine. She is currently on steroids, which help reduce some symptoms, but cause other issues. We hope we can begin to taper her off the steroids beginning mid-week. Since we are now off the NIH study, we'll need to determine a new course of action to address the brain tumor as well. Hopefully, there was no new growth.
Prayers for the radiation to be 100% effective in destroying the mass on Ella's spine, for Ella to be free from side effects, for guidance regarding treatment for her brain tumor and for a miraculous healing would be wonderful. It's a lot, but we know He is capable of this, and so much more.
In the midst of all of this, we feel very blessed to be surrounded by lots of love and prayers from so many people. Thank you for journeying with us!
Love,The Newmillers