Update on Ella Newmiller

It has been more than two months since our last post. I think daily I need to do an update, but it is hard when we don't have much good news to report. Ella continues to struggle, unable to move her legs or arms (still a small bit of use of the left hand), loss of the ability to control her bladder, swollen from steroids (even though she's only on a low dose), sometimes there are breathing and swallowing troubles, she gets tired easily and often just feels icky. As this nightmare unfolds, the days can be tough. That said, throughout the last few months, there have been many blessings. Most in the form of friends, family and strangers - caroling by church friends and Ella's third grade classmates, visits with friends, some friends bringing a little bit of Hawaii to Ella (where she said she'd like to go if we could), and recently, hundreds of handmade hearts that have been arriving in the mail from all over, demonstrating just how much we are surrounded by love.
Many people ask what to pray for and how to help. Well, we're still praying for a miracle. So, we'd love for you to do the same. We also pray for joy in Ella's days and that we continue to feel a strong sense of God's presence. In addition to prayer, if you're local and want to help, we'd love for you to honor Ella by either participating in, or volunteering at, an upcoming race that will benefit pediatric brain tumor research - in the hopes that someday other families will be spared from what we are now experiencing. Here are the details:
What: 5K, 10K and 1 mile runWhen: Saturday, March 24, 2012Where: North RaleighWhy: To honor Ella and benefit The Cure Starts Now and the Pediatric Brain Tumor FoundationWho: Sponsored by the amazing folks at Chick-fil-A at Falls Village and Chick-fil-A at Capital CrossingFor non-runners or walkers, many volunteers are needed. Please visit http://connectrace.net/event/chick-fil-a-race-series-raleigh for more information and registration.
To run or walk in the race please visit www.cfaraceseries.com.
As always, many thanks for all of the love and support you continue to show our family.
Blessings,The Newmillers