Update on Bella....5/14/2013

With the help of many, many amazing people we were able to take Bella to Disney. All she has wanted to do was to go on Its a Small World. She has been sleeping most of the days but whenever she wakes up she asks to go. I had a crazy idea to see if we could take her on the ride one last time. So within 24 hours we had a huge van, portable oxygen, a nurse and friends waiting for us at Disney to escort us in. It was probably the quickest Disney visit ever. She slept the whole way up and the whole time thru the park. The minute we were on the ride she opened her eyes and stayed awake the entire time until the ride was over. We are now on our way back home. It was a short but very meaningful and unforgettable visit. There are NO words to express our thanks to all who helped make this happen. There were a LOT of logistics to make this happen safely and we r forever thankful and extremely grateful. God bless u all. #LIVELIKEBELLA