Bastian has 3 more radiation treatments to go. His pain is so much better. I talked with his doc in Chicago via email yesterday about what's next. They tested his tumor sample to check for mutations that are known to respond in certain drug trials. And although the one they were hoping for was not there, there are a few mutations present that have drugs that have been known to help. So, we are putting together a list of trials and side effects, and we will weigh out the pros and cons of each. For the moment, we are taking a small break from any drugs while we plan our next battle. He's been feeling really good lately, playing outside, not much pain, only little bits of nausea. It's been nice to have an active, not-hurting Bastian in the house.
Dana, Sebastian's Mother