Well, we had a long 2 days in Chicago. On Wednesday, we started cycle 2, and a new drug was added. We had some delay at his appointment, because they couldn't start the meds until his labs came back, so the boys watched a couple movies to pass the time. They saw that his thrush is still here, and not getting better than it was last week, so they called in a new med to Walgreens. On our way home Walgreens called to say the prescription was on hold, and I was so tired by then, that I didn't bother with it that night. Yesterday, he got the same 2 drugs from the 1st cycle. Both boys have got colds, and the doc noticed some decreased lung function in Bastian, so it's back on his albuterol inhaler. I brought up the meds being on hold at Walgreens, and they called to straighten it out, assuring us it would be ready for me when I got home. When we got back to town, no meds... they don't have it in stock, and none of the other pharmacies in town do either. Very frustrating. They are trying to rush some in for the weekend, and in the mean time, he'll just keep taking the magic mouthwash. He's been very tired these past couple weeks, and I think it's that the chemo is finally catching up to him. School starts on Wednesday, and he's gonna have to miss the first day for a clinic visit. It's been a long, tiring week.
Mom Dana